1. 25+ years and never saw an endo. My primary doctors have managed my Hashimoto’s well. I have always been on an NDT. I do have an allergist and a gastroenterologist as I have celiac disease.

  2. The Patient Celiac, Jessica, is a neonatal “baby” doctor. She had four small children many years ago. As adorable as they were, her rug rats made her sick. She made her home gluten free and only fed them gluten when prepping them for celiac disease testing. You can google her. She is not too active now on Facebook. Busy with teens and a medical practice, I imagine.

  3. I had an Albert Nippon black crepe, pleated-front dress with a white detachable collar, mauve bow and matching belt. I spent about $140 for that dress in 1980 which was a fortune (about $500 today). I can not tell you how flattering that dress was and the way it moved as you walked. A Very 1930’s feel. Had? I still have the dress. Timeless.

  4. Definitely a good point, but there are also gluten free foods that don’t have the certification. Some companies don’t want to pay for official endorsement, but for a device like this it is strange why they wouldn’t get SOMEONE to support it.9

  5. Because it can not pass FDA requirements for medical devices. Most likely because it can not do what it claims. The Gluten Free Watchdog just retested the NIMA. It gave false positives against lab testing.

  6. The time for an endoscopy is 2 to 4 weeks of consuming gluten during a challenge. Your GI will then ask you to remain on gluten for another two to four weeks for serological (blood) autoantibodies testing. No gluten = no damage if in fact, you have celiac disease. You can just wait for the two weeks, but know that everyone is different. You might be stuck in diagnostic limboland. If your doctor has instructed you to consume gluten now, then follow those instructions. You will get the best testing outcome, and that is what you want, right?

  7. Please talk to your doctor. All celiac disease testing, including an endoscopy to obtain small intestinal biopsies, requires you to be on a daily diet of gluten.

  8. Celiac disease is like a chameleon. Symptoms can wax or wane. If your gut is healed, a small gluten exposure might not even be felt. Several gluten exposures? That might be telling.

  9. My brother’s room was decorated for the Bicentennial in 1976. Red, white and blue wall paper. Striped with stars. My wallpapered room was lemon yellow and Lime green flowers (school colors).

  10. One week should not impact tests. The cut off is two weeks (a lecture I heard years ago from Dr. Fasano). Make sure he consumes gluten for two weeks as his doctor instructed and he should be fine.

  11. I have celiac disease. Gluten triggers an autoimmune reaction (the small intestine is damaged) when you have celiac disease. How long that reaction occurs is dependent on the person. For some, they experience symptoms for a few days, weeks or even months. A very few celiacs are refractory and do not improve even on a strict gluten free diet. Non-Celiac Gluten Sensitivity causes symptoms, but no small intestinal damage. I am not sure how long symptoms can last. This diagnosis is made after ruling out celiac disease. Know that celiac disease is systemic. It can cause fertility issues, migraines, brain fog and extreme fatigue and those can occur without any gut issues.

  12. What a nice breakfast nook! And that lamp! Does it pull down? Had one when I was a kid.

  13. You need to use the lab range that is done with the testing lab and not refer to the Internet. Labs are all different. That sad, it is a negative. However, you did not get the entire panel (DGP and EMA). I test positive to only the DGP IGA. Never, ever had a positive EMA or TTG and I had the full panel repeated many times and I am biopsy-confirmed and have healed based on repeat biopsies while on a gluten free diet. Some kids test better using the DGP test. Plus, some people are seronegative. That means they do not test positive on autoantibodies testing. When I tested my kid, I made sure she had gluten daily (1 to 2 slices of bread or equivalent daily) for three months prior to the blood draw. So there would be no doubt. Because my home is gluten free.

  14. My TSH has ranged from .44 to 3.7 over the last 25 years. I would be happy/feel good with your TSH. Going hyperthyroid is not good! It is worse than being hypothyroid in my opinion. Most doctors think a TSH between a 1 and a 3 is optimal provided you are on thyroid hormone replacement.

  15. Hello, what made it go up to the 3s? I was 1.09 last month and now I’m 3.20 :(

  16. Autoimmunity. It is not a constant attack. It can actually go into remission for some AI diseases and when the organ is not permanently destroyed. For example, in Celiac disease, the small intestine can recover with treatment.

  17. 22 years sounds like quite a long haul of metabolic stress and dysregulation. I'm truly sorry you've had to live in a state of un-ease for so long. May I ask what your current practitioner is doing to stem off the low grade inflammation, potential slow leak in the gut, and estrogen dominance that are at the root level of this syndrome? Also what are they doing to help deeply detox and re-generate your liver naturally? Also if your care provider or endocrinologist don't have a proper regiment to re-invigorate your adrenal glands and Thymus, which directly power and support the Thyroid, then you will continue fluctuating between Hypo and hyper; that and the Estrogen rollercoaster.

  18. The OP has autoimmune diabetes. I think her endo is doing her job managing both of them.

  19. Why manage when both can be fully re-missed through diet, lifestyle, and hormonal homeostasis. Many people prefer thinking. Thinking is easy. Thinking is nebulous. Thinking is in a constant state of flux. Knowing is finite. Knowing means taking responsibility. Knowing is hard. People prefer to stay thinking. The truth is always the scariest. It shatters illusion. It shatters victimhood. It rouses and makes people uncomfortable. At the end of the day you have to decide if willful ignorance is better than slight discomfort. It's a choice we all have to make.

  20. Autoimmune diabetes (Type 1) does not go into remission. Only very rare cases have been reported and only temporarily. The pancreas (beta cells) are permanently damaged. Maybe you are confusing Type 2 diabetes where it can go into remission with diet and exercise. But Type 2 is not autoimmune driven. And once beta cells are lost, Type 2 diabetics can not experience remission and require insulin to live.

  21. I am so sorry for your loss. Please give your body time to adjust on its own. You do not need to stress your body further (increasing the hormone cortisol). That alone, can impede weight loss. The thyroid is not the only “weight” regulator. Be patient. My daughter and I both have Hash and we have never been overweight. Everyone is different.

  22. Respectfully, I think you got this wrong. The study shows that patients did not get worse despite consuming an awful lot of gluten daily for 6 weeks.

  23. And how are your repeated small intestinal biopsies? That would be some pretty clear evidence that your occasional cheats are not causing damage.

  24. Are you sure they are hives and not shingles? If they are hives, antihistamines take care of the itching, but not the outbreak.

  25. They don’t look like shingles, and they aren’t painful (just itchy). So, hopefully not. Benadryl seems to have ‘meh’ results so far.

  26. My allergist prescribed a cocktail of antihistamines. Benedryl is the least favored. It is a first generation antihistamine and it crosses the blood brain barrier. Try Claiton or Zyrtec. Ask your doctor about increased dosing too.

  27. My Lodge was chipped on the handles when I bought it. It was discounted as a result. It is imperfect, like all of us. But it cooks like a dream. I love it.

  28. Wait a minute. Why did you see a GI now? A gluten free diet that resolves anemia (that was my main symptom) should resolve other gut issues. Of course you can have multiple autoimmune diseases or another illness.

  29. I have a lot of other medical issues. I'm actually unsure if it resolved the anemia; I'll have to look at recent bloodwork

  30. Well, treatment is a gluten free diet or if severe (refractory), biologics are prescribed.

  31. Your PCP/GP/Internist can order it. You can even order it yourself (and pay) in a walk in lab if your state allows for that.

  32. I got a full panel! I only included the abnormal results. I’ve also tried going gluten free for a month, with no change.

  33. Ah, my DGP IgA was the only positive on the panel. In fact, it is the only one that is elevated and I have had the complete panel, many, many times. I did have some severe damage though based on my biopsies (Marsh Stage IIIB). I presented with anemia.

  34. When I say useless, I just mean in terms of prevention and information - not prescribing medicine or treatments. I know that not having to take meds is great and my body is still "kinda" working ok. All the women on my moms side take thyroid meds; so we talk about my "positives" a lot. It's just that they all have a clear diagnosis, and there is some control in that - compared to being in limbo - that's all.

  35. I get wanting to be validated. My kid went gluten free at the start of the pandemic. Things were chaotic. By summer she could be tested, but not without a gluten challenge and she refused. Had her thyroid antibodies tested and then an ultrasound of her thyroid. Both were positive. She got her official diagnosis. This helped her to get to a rheumatologist to figure out her burning hot hands, ears, and feet along with Raynaud’s which can occur simultaneously. Her GI advised her to remain gluten free and consider herself a after he removed her non functioning gallbladder (I had the same issue), tested her genes and her response to the GF diet.

  36. Nope. An illness is not going to cause three positives on your panel. Sometimes one slightly elevated test result could be due to other autoimmune diseases. But this does not apply to you. Three positives. But I get your denial. I was pretty shocked when my doctor ordered a celiac panel. I had no symptoms other an anemia.

  37. Oh, an one slightly elevated test could be a different autoimmune disease?? I only had one slight positive out of all the tests and endoscopy was normal, but they labeled be as celiac. I went gluten free for two years, but symptoms got worse, and doctor just sort of ignores it...

  38. Yes, if say, your TTG was just slightly elevated, it could be do to many other things. Start googling. Here is a place to start:

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