Narcolepsy, PTSD, Major Depression: is it even worth applying for disability?

  1. Are you currently, or have you been, seeking treatment for your disabilities? If you feel they are severe enough, you have nothing to lose by at least applying for SSI/SSDI. Getting approved is a whole other issue. Are you working at all right now? Are you seeking treatment for your disabilities?

  2. I take Armodafinil 150mg daily for Narcolepsy and Venlafaxine 300mg daily for depression. I’ve done years of therapy for PTSD, I’m in the process of pursuing Ketamine infusions, and I’m looking into switching Armodafinil for Xywav (would be better treatment but a very restricted drug and I worry about access).

  3. You have to have an illness excepted to last a year Or more , with documented attempts at regular treatment that are consistent so no one appointment here and one there. Reporting symptoms that affect your daily activities that prevent you from working most jobs.

  4. Would you mind sharing about the process with me? Given the ways my mental illness and narcolepsy actively make me an inviable full-time employee and given the way my medical records reflect this (sleep studies, psych hospitalizations) I would hope I qualify but I’m afraid of even trying.

  5. You say you've been unable to sustain full-time employment. It also sounds like you have a college degree and possibly a graduate degree. Social Security doesn't care if you work full or part-time. They consider if you are able to do Substantial Gainful Activity (SGA). SGA for 2022 is $1,350 a month. If you're able to work and make $1,350 a month, you won't qualify for SSI/SSDI. Since you have a degree, your wages may be higher, and may make that amount with part-time work.

  6. As for accommodations, the main issue with my illnesses is reliability. I fall asleep and/or fall apart in ways that make me a fundamentally less dependable colleague, and this issue damaged my professional relationships both in school and in the work force. Scheduled breaks/naps don’t address the reality that I may cease to be functional when I am on the clock.

  7. This is the issue I find myself facing; freelancing has been more manageable with my illnesses, but it’s nowhere near enough financially to keep up with living expenses and with the amount of treatment I need to be functional.

  8. You are the only one that can decide if filing a claim is worth it to you. It is true that you may be denied since 2 out of 3 initial claims are denied. It can be a long process without any guarantee that you will be approved. But you may be the 1 out of 3 approved on initial. Or one of the many others approved on appeal. Also, as others have pointed out, even if you did qualify, generally it is substantially less money than people get from jobs. So you should be ready for that as well. Maybe you really need a friend or family member who will help you along the way. You can also hire a lawyer, but they are not going to hold your hands and be supportive like a friend, although if you go to a hearing, you will want a lawyer.

  9. It's always worth it of you can't work. I had a part time job even at the time I finally got approved without even going to court because a disability advocate (former employees of SSA) told me exactly what to say and I had everything else like dr agreement etc lined up ready. They approved me in a couple months and backdated it 3 years. I'm on SSDI so I get more $ then ssi so I got 36k in backpay too. Heck yeah it's worth it if you legitimately can't work full time.

  10. I'd highly reccomend getting an attorney. Most will not take you on unless they think they have a good case. It sounds like you've really been going through it! Just be prepared that the application process can be very long and daunting and you will likely be denied a couple times then have to go to the hearing level. This can take a couple of years or more. Wishing you all the best!

  11. Hi! I really encourage you to apply if you feel you just absolutely can not work. From what you've said it sounds like a good case for SSDI. I applied in February this year and was approved by June. I also had many psych stays, and a few of those involuntary. My biggest advice is stay on top of your appointments with your doctors. Also, there is a good chance they will mail you a form to fill out about how you live day to day with your disability. You need to fill that out as if it's your most debilitating day. Not you on a good day. Good luck and I hope all works out!

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